The general FAMILY data access procedure is as follows:

• Fill in project initiation form*
• Send to FAMILY WP2 leads (family@erasmusmc.nl)
• WP will screen, and then send to Steering Committee (SC)
  1. If needed, WP2 will inform requester of special, cohort-specific procedures (see below)
  2. If needed, WP2 will bring to SC meeting for discussion
• Once explicit approval is granted by all involved cohorts, project can proceed
• If new team members present, Family DB Annex F (personnel)* must be updated
• Fill in DRE Setup Form* to configure workspace and or VM as needed

*Form available in Keyways

Cohort-Specific Data Request Procedures

Generation R:

A data request must be filed with the Generation R Management Team. The FAMILY Project Initiation Form must be accompanied by a roughly ½ A4 description of the project. These forms can be mailed to the Generation R representatives in FAMILY (dr. Charlotte Cecil or dr. Ryan Muetzel), who will then obtain permission for the project from the GenR MT. 

ALSPAC: To be continued

ABCD:

In order to access ABCD data, a user must have a valid and current NDA ABCD Data Use Agreement on file. Please send this DUA to WP2 (family@Erasmusmc.nl). See the ABCD website for details on obtaining access: https://nda.nih.gov/abcd/request-access

Cohort-Specific Data Request Procedures

MOBA: 

HCP: